Saturday, January 2, 2016

Cycle 6 - and maybe I have had enough of this

Chapter 14 - Pattern spotting
Today is Saturday 2nd January, and Cycle six ended on Wednesday just three days ago. Happily the hospital have given me a week off, which I am looking forward to, before probably restarting with cycle seven next Thursday.
Once you have completed six cycles of chemotherapy, you have enough data to spot some patterns. Of course these may be coincidences.
My main side-effects are, in no particular order:
  1. sore spots in my mouth, especially my lips; here I have spotted a pattern: even if I am super careful not to bite my lips, I get sore spots about day 13 of the cycle, and then
    • they get steadily worse and more painful if I'm on the original high dose of chemo; or
    • they get worse for a few days then heal after about 7 days if I'm on the new lower dose.
  2. tiredness; here the pattern is that every cycle I am more tired, and tired for longer. In cycle 6 I've had a substantial nap during the day on pretty much every day of the cycle, and even now that I'm a few days into my "week off", I still feel washed out.
  3. runny noses and colds; here the pattern is that I got them a lot in the first few high-dose cycles, and I don't seem to be getting them so much in the last two low-dose cycles - hurray! I do still get a runny nose when out in the cold, but it's not bad.
  4. Three Torrin-creations in Lego
    the skin of my fingertips falling apart - especially my right finger and thumb, which I use for many important tasks, including taking Lego apart for Torrin. For this side-effect, there is no pattern. The skin is shiny and cracking all the time.
I was given a third CT scan on Wednesday 30th December, to help my doctors decide what to do next. The default is that cycles 7 and 8 will roll along and ruin much of January. I'm hoping that the doctors will have a reason for stopping my chemotherapy now, however, because I have had enough of being tired; I shouldn't complain - I am sure it could be much worse; but I would like to feel well again and have some fun, and I am optimistic that stopping chemotherapy will let me do that.
We have managed to have some fun in the last two weeks, in spite of the chemo. Having got a good handle on my capabilities during cycle 5, we planned a perfectly timed holiday in North Wales in cycle 6, over Christmas, and had great fun on the beach and on a couple of hills, where we enjoyed generous quantities of sun, rain, wind, and sand.
We also enjoyed watching a remarkably good brace of movies.
I'll list here all the movies we've seen in the last month or two, giving star-ratings out of five to highlight the brilliant ones.
The first remarkably good film we saw was Mission Impossible - Rogue Nation, which I thought was possibly the best action movie I've ever seen. After watching it, I re-watched the original Tom Cruise Mission Impossible and found it slow and dull in comparison. ☆☆☆☆☆
Next we saw Bridge of Spies, which was quite a good film, and certainly gave some interesting ideas about how to be a negotiator. ☆☆☆
For our third trip to the big screen we saw Star Wars - the Force Awakens, which was a million times as good as George Lucas's last three Star Warses. I really liked the way they used Han Solo, and the new relationships that they threw us into, and the way that lots more epic personal history has washed by [between episodes six and seven] without being shown. My main complaint is that the film seemed really flickery: I felt I could often see the frame rate ☆☆☆☆☆
Back at home we had a disappointing evening watching The Imitation Game, which is a dud in so many ways - it is criminal how they have replaced Turing's life by fiction. The fiction is far more Hollywood, with ridiculous personal conflicts and drama, such as the notion that Turing was put in charge of the project, overruling his boss; and his boss marching in and dramatically switching off the Bombe while it was in the middle of a computation; and the idea that they were working on code-breaking for ages, including building Bombes, then had the brainwave that one might try to crack messages by guessing what the plaintext was. Awful.
Our next DVD about a Cambridge boffin was Theory of Everything , which was tenderly made and wonderfully acted. ☆☆☆☆
Our next two wonderful successes on DVD were both found by following amazon-recommendations from Ken Loach's lovely film about four young scots, The Angel's Share , [☆☆☆☆]
which led us to the absolutely delightful Sunshine on Leith , which is a musical based on the music of the Proclaimers. This film made me cry with happiness not because the three love stories in it were very interesting (they weren't) but because the film is so exuberantly founded on a deep (and perhaps nationalistic?) love of the music of the Proclaimers, which I share. The film is a love-song to the Proclaimers. After we watched this film, everywhere we drove in our borrowed car, we listened to five Proclaimers albums [ Sunshine on Leith , This is the Story , Hit the Highway , Restless Soul , and Life With You ] on continuous-playing shuffle. Glorious! ☆☆☆☆☆
The second amazon-recommendation (based on Angel's Share) was the best film of all, at least in terms of laughs per minute, and perhaps overall: What we did on our holiday - another Scottish film featuring Billy Connolly and three super child actors, and an awesomely funny script highly reminiscent of Parenthood [one of my favourite films of all time] and Little Miss Sunshine . ☆☆☆☆☆
Our sequence of DVD hits continued with the absolutely delightful The Grand Budapest Hotel , which reminded me of the best Harold Lloyd films with its whimsy and speed. ☆☆☆☆☆
Next, An Inspector Calls proved to be a surprisingly gripping watch. ☆☆☆
We tried to continue the joy of viewing The Grand Budapest Hotel by watching the same director's Rushmore but we found it really disappointing. It was somewhat quirky and memorable, but the central love-triangle premise was that the demure teacher-lady-widow, who was both perfect and characterless, was romantically attracted both to a deluded moron of a 15-year old and to a rich 50-year-old jerk. This made no sense, and it was impossible to resonate with any of the characters.
Things picked up with the next DVD: Belle , based on a true story of a mixed-race girl who became a lady in the house of the Lord Chief Justice at the time when the slave trade was going strong, and people of colour were, for upper class snobs, untouchable. Like the Turing film, this film about Belle is heavily fictionalised, but at least the film makers had the honesty to say "based on a true story" in the opening credits. ☆☆☆☆
Last, we watched A Little Chaos , about King Louis 14, his court, and some gardeners making the gardens at Versailles. Alan Rickman does a lovely King, and the scene praised by critics in which the bereaved King has an incognito chat in the garden was indeed nice, but I felt a bit disappointed that we didn't see more of the grandeur and behind the scenes difficulty of the creation of the gardens. The masterpiece garden of Kate Winslet was a disappointment after all the anticipation, given that this was what the whole film was about. And her brainwave, near the beginning of the film, that the fountains in that garden could be fed by perpetually recycled water was most irritating to a physicist, since there was no talk of any pump, only a nonsensical assertion that the "pressure" could be used to recycle the water back to the top. ☆☆
OK, I'll sign out now. Except for completeness, I suppose I should mention the happy news which came out at New Year, that I've just been awarded a knighthood. Many thanks to all my supporters and to my family!

1 comment:

Julien Dossier said...

Dear David, congratulations for sharing updates about your treatment, for launching the research project and for your dogged determination to fight cancer. I keep recommending your work to colleagues, students and clients. Your 2015 updates make it all the more personal. As you're into a new career as film critic, would you like to review Pierre Etaix's films? Bon courage! Julien